Newly Diagnosed with Cystic Fibrosis (CF)

Managing CF can feel overwhelming so it is important for you to take these steps when you or a loved one is diagnosed with CF. You will meet with the care team (physicians, CF care coordinator, nurses, respiratory therapists, nutritionist, and social worker) who will explain the condition, map out a CF care strategy, and discuss resources. 

In addition to partnering with your healthcare team, the steps below can help you better understand and manage a CF diagnosis.

• Learn about cystic fibrosis. It is important to find out how cystic fibrosis affects your body and what steps you need to take to best manage your disease.
• Find out what treatments and therapies are available for managing your CF.
• If you don’t have a healthcare provider that specializes in CF, request an evaluation at an accredited CF center. The Cystic Fibrosis Foundation website has a tool to assist in locating a care center.