PF Stories

Debbie H. I am a Family Nurse Practitioner, diagnosed with NSIP for only two months and this has devastated my life in a short time period.

Ann B. I had viral pneumonia when I was 8 years old, in 1955. I had it for probably 4 months. I got it from my mother who had been hospitalized with it before I was became ill.

Staci D. My mother passed away of idiopathic pulmonary fibrosis a few days ago. She had it for a few years, but was misdiagnosed. If only I had gotten involved in her care sooner, maybe I could have helped.

Ashley G. My grandmother's name is Virginia and she was 75 years old and had been sick for awhile off and on. December 25th 2018, she fainted and we had her go to the hospital at this time she was diagnosed with congestive heart failure and they told us she ha

Jane B. My name is Jane Berry. I am 78 years old and I have Ideopathic Pulmonary Fibrosis. I was first diagnosed years ago with COPD.

Jim H. In 2013, I was diagnosed with a disease that has no determined cause or cure. My doctors told me that my lungs would deteriorate but they couldn’t predict at what rate. I was instructed to get my affairs in order and enjoy the rest of my very-limited

Dawn M. Thank you for allowing me to share my story. My mother had suffered for years with difficulties breathing. She was told she had asthma, and then sarcodosis. My folks moved from the Midwest to the southwest to retire as well as to help my mother breat

Barbara M. I had never heard of IPF until I was diagnosed in 2003. The first thing I did was look it up online. What a scary and depressing future the Internet told me I was facing—3 to 5 years to live.

Rachel S. At the age of 4, I was diagnosed with juvenile rheumatoid arthritis. My parents and I were told that this disease generally presents itself in either of two forms: one that attacks primarily the joints or a systemic version that attacks the internal

Mike O. I was diagnosed with IPF December 2014, waiting on a double lung transplant list.

Terril M. I come from a family scarred by IPF. I'm a nurse practitioner, who noticed clubbing of the fingers, when my dad, a lifelong smoker, was struggling to breath. I assumed he had COPD, but his doctor told him it was IPF. He died in 1998.

Jim M. Hello my name is Jim Mcdonald, I'm 60 and along with my wife we live in Fort Worth, TX. I was diagnosed with UIP on biopsy which related to IPF at the pulmonologist office in 2014. My wife Diana has been by my side and is my biggest supporter since w

Jeanne M.

Carolyn C. My son was recently diagnosed with Pulmonary Fibrosis. Apparently he has had it for about four years. He is 59 years old and appears to be the picture of health. His family and I were concerned about his cough and he saw a pulmonary doctor. Apparentl

Mike L. Today's date is 7/8/2018. I was diagnosed in June of 2015. I am a 65 year old male. I have been on oxygen for 1 year. My mother died from the disease at the age of 79 in 2002.